My Journey

Welcome to my page. I was diagnosed with Parkinson's Disease 4 1/2 years ago (just before my 33 birthday). This past year, a group of my friends, family, and I ran in an endurance run to raise funds towards awareness and finding a cure for this neurological disorder. This year, we would love to organize a race soley for this purpose. I will share my story as I try to run, and give you details on how our racing plans are going. Thanks for sharing my journey with me:o)

Sunday, June 23, 2013

Hello old me:o)

I know I keep getting sappy about all the wonderful things God has brought back into my life through dbs...but I just can't help it! This past week, I helped out with the teen group at my church's VBS. I played kick ball, capture the flag...and at the risk of bragging, I actually CAPTURED A FLAG...after falling flat on my face and convincing the nice gentlemen who was chasing me to not add to my embarrassment and tag me as I lay on the ground. He agreed, and I jumped up and got the flag. He then tagged me and ran off. I stood there waiting for someone to escort me to jail. No one off I ran with flag in hand! lol. The next day I woke up feeling like I went over Niagra Falls in a barrel!

On Monday I went to my neuro's office to get a tweaking. My reasoning was 4 1/2 miles into my 8 mile run, I became distonic and had to stop completely after 6 mi and walk the last 2. After going through several settings,, I ended up walking out of there exactly the same setting as I was when I went

I tell these stories because my complaints have def changed. Before DBS my complaints were I fall asleep while driving (not n e more), I black out when standing up (rarely), tremor in both sides now (non exsistant), can't swallow food (not so much), shuffle when walking (never), Dystonia kicks in about 5 minutes into run (hardly the case now). These are just a few that I can remember. so it is funny to me that a year later I am capturing flags, running for miles, staying awake for whole movies. driving hours with no problem...the list goes on and on. I am finally starting to recognize the girl pre-PD. I am so incredibly thankful to God for my miracle, my second chance to enjoy life. I will not take this for granted. I wake up everyday and know how blessed I am. I hope I never forget it!